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2017 
Wave for Hope
 



Register Now for the 2017 Chip for Charity
Thanks to our wonderful friends for their unwavering support last year!
Your contribution is helping children.
Your contribution is allowing us to
"Make a difference". 

 

CLICK HERE to support SSADH every time you shop Amazon.com.

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The SSADH association represents children and families affected by Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)

Our mission is to help children and families who are affected by SSADH, by finding better treatments and ultimately a cure for the disease.

The SSADH Association is a non-profit, voluntary organization.

To learn more go the 
SSADH Association click on Milestones.

UPDATES                                                                                                  

2017

$1.58 million grant awarded to Mike Gibson, PhD click here for details

Click here to support the Proposed Natural History Study of Patients with SSADH

The Cinquemani family has started an SSADH Association in Germany.
Click here to visit their new web site.


2016 

Click here to read about 2016 Research Updates

9/26/2016
Click here to read about the Changes to the NIH SGS-742 Trial.





Rare Disease Legislative Advocates Conference
February 25 – March 1, 2018 in Washington DC.

Click Here to link to the RDLA Conference Site 



Click here to read more about the NORD 2017 Rare Summit

GET INVOLVED                                                                                        

 


 

Click here  to become a member of the SSADH Association

FUNDRAISING EVENTS                                                                               

 

 

The SSADH Association is a 501(c)3 non-profit volunteer organization.

We are supported by the many generous people who hold fundraising events
and make tax deductible donations.

For upcoming fundraising events  click here.

If you are interested in holding a fundraiser  click here.

OUR THANKS                                                                     


Thanks to the Hoffman's for raising $123,000 at the 
19th Annual Chip for Charity





Thanks to the entire LeVine family for raising
close to $17,000 with Wave of Hope.


Thank-You to Rick Rader, MD for your kind editorial in
Exceptional Parent (EP) Magazine.