The SSADH association represents children and families affected by Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)
Our mission is to help children and families who are affected by SSADH, by finding better treatments and ultimately a cure for the disease.
The SSADH Association is a non-profit, voluntary organization.
To learn more go the SSADH Association click on Milestones.
Click here to support the Proposed Natural History Study of Patients with SSADH
family has started an SSADH Association in Germany.
Click here to visit their new web site.
Click here to read about 2016 Research Updates
Click here to read about the Changes to the NIH SGS-742 Trial.
Rare Disease Legislative Advocates Conference
February 27 – March 2, 2017 in Washington DC.
Click Here to link to the RDLA Conference Site
Click here to read the NORD 2016 Summit Summary
Click here to become a member of the SSADH Association
The SSADH Association is a 501(c)3 non-profit volunteer organization.
We are supported by the many generous people who hold fundraising events
and make tax deductible donations.
For upcoming fundraising events click here.
If you are interested in holding a fundraiser click here.
Thanks to the Hoffman's for raising over a million dollars
with the funds raised at this years
18th Annual Chip for Charity
Thanks to the entire LeVine family for raising
close to $17,000 with Wave of Hope.
Thank-You to Rick Rader, MD for your kind editorial in
Exceptional Parent (EP) Magazine.