The SSADH association represents children and families affected by
Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)
Our mission is to help children and families who are affected by SSADH,
by finding better treatments and ultimately a cure for the disease.
The SSADH Association is a non-profit, voluntary organization.
To learn more go the SSADH Association click on Milestones.
Letter from K. M. Gibson, PhD, FACMG to SSADH families regarding the SGS-742 Medication Trial at the National Institutes of Health (NIH).
Click here to review the letter.
9-17-2014 Click here to read more about Dr. Lakhani being awarded
$275,000 to continue SSADH Research.
4-30-2014 Attention SSADH Patients Needed to Participate in:
Evaluation of Autophagy Processes in SSADH Deficiency Research Study
Click here to read about the NIH SGS-742 Trial Recruiting Patients.
SSADH Association awards a 2014 $79,500 Research Grant
click here to read more.
Rare Disease Legislative Advocates Conference
February 23 – 27, 2015 in Washington DC.
Click Here to link to the RDLA Conference Site
Update from 2014 RDLA Event
SSADH NIH Study Authorized note from Dr. Pearl
SSADH Association 2010/2011 Research Grant Program
AWARDS $164,000 to Neurotransmitter Disease Research
Click here for a list of recipients/awards.
Click here to become a member of
the SSADH Association
The SSADH Association is a 501(c)3 non-profit volunteer organization.
We are supported by the many generous people who hold fundraising events
and make tax deductable donations.
For upcoming fundraising events click here.
If you are interested in holding a fundraiser click here.
Thanks to the McConnell Family for hosting the
SSADH Snicklefritz Fund Raiser.
Thank-You to the Strickland Family for donating
$30,000 raised at the 2nd Liam's Links.
Thanks to the entire LeVine family for raising
close to $25,000 with Wave of Hope.
Thanks to the Hoffman's for the success of the
16th Annual Chip for Charity
Thank-You to Rick Rader, MD for your kind editorial in
Exceptional Parent (EP) Magazine.