SSADH Consortium (SDIC)

October 20, 2020

The SSADH Virtual Conference was held on July 9 and 10, 2020. The top SSADH researchers and clinicians from around the world shared updates for medical professionals and patient families. Over 300 attendees registered, representing 25 countries and every continent. The proceedings from the event will be published as a…

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Successful 22nd Annual Chip for Charity

September 17, 2020

The 22nd Annual Chip for Charity Golf Outing was help on September 10 in southern Wisconsin in honor of Sam Hoffman.  Unfortunately, in addition to managing the challenges that came with the COVID Pandemic we also had less than perfect weather.  However, regardless of the cold all day rain this…

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Busy Boxes by Mattie Jane

July 22, 2020

Mattie Jane has created a company called Busy Boxes to sell sensory playdough boxes.  Each box contains her homemade, non-toxic, scented playdough and lots of themed items for hours of sensory fun!  The goal of each box is to help children develop and improve their motor skills, encourage language and…

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22nd annual Chip for Charity

June 24, 2020

On September 10, 2020 the 22nd Annual Chip for Charity Golf Outing will be held at Kettle Hills Golf Course, in Richfield, Wisconsin.  Last year’s event raised $123,000 pushing the cumulative total to 1.6 million dollars! Proceeds from the golf outing are used to help the SSADH Association in its…

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Announcing SSADH Conference

May 19, 2020

The SSADH Conference that was planned for Boston this July has been moved to a virtual format. The event will take place as two half day online presentations on July 9 and 10. Every effort was made to accommodate time zones and though we had to collapse the original agenda…

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Added Natural History Study Site Locations

January 9, 2020

We are pleased to announce that we have opened sites in Barcelona, Spain and Oslo and Gottingen, Germany for patients to participate in the SSADH Natural History Study. Patients willing to participate in the SSADH Natural History Study from Spain should get in touch with Dr. Natalia Juliá (Neurologist) who…

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