Announcing International SSADH Conference

As of 3/25/2020 this year’s 2020 International SSADH Conference planned for July has been postponed, due to the evolving public health emergency. The safety of attendees is our top priority and always comes first. We sincerely apologize for any inconvenience this may cause and look forward to hosting the conference next year.

We are planning an International SSADHD Conference to be held in Boston, MA in the United States on July 9 – 10, 2020.  We have pulled together researchers and clinicians who are involved with SSADH from around the world.  We will also have sessions that focus on everyday issues that SSADH family’s face and a panel of experts to answer any questions that you may have. 

We have a limited reserved block of rooms at the Inn at Longwood Medical (where the event will take place) for $249/night +taxes/fees for the nights of Wednesday, July 8 and Thursday, July 9.  

Inn at Longwood Medical
342 Longwood Avenue, Fenway Kenmore
Boston, Massachusetts 02115 USA
Phone: (617) 731-4700

Click here to secure your hotel room online.

If you call for reservations please be sure to use this code BCHN0720 to receive the discounted room rate.

Registration is free for the families, click here to register for the 2020 SSADH International Conference so we have an accurate count of who will be attending.

Below is the current agenda for the 2020 Conference. Be sure to review both pages.

2020 International SSADHD Conference Final

Additional information will be passes along as it becomes available.  Please let me know if you have any questions by email at: