Please take a minute to register your patient with the SSADH Association.  It is imperative that we are aware of every SSADH patient.  The information that we are asking for on the registration form has been requested by the SSADH research doctors.  Though it seems overwhelming, the more information that you are able to provide the better we will be able to serve each patient.

Additionally, if you have genetic testing, please email a copy of those results to

The information that you share will not be used in connection with the patient’s name, rather in terms of numbers and tracking patient mutations.  Furthermore, the information will be used to keep you updated on the latest SSADH research and trials/studies that may be available for the patients.

Click this link to register your patient.

Please let me know you have any questions?

Carolyn Hoffman
498 Lillian Court
P.O. Box 180622
Delafield, WI 53018

Phone: (414) 587-8828